Day 11

Today was one of my better days in probably the past week - didn't feel like being sick, was well-rested after sleeping in this morning, and my face is now only half swollen. I ate a lot better today, too, even if I haven't really been eating full meals. They ask me every morning (generally while I'm still rather groggy) what I ate the day before, and I always feel like I'm not telling them enough, though sometimes I forget things and they will remind me because they can see the empty milk carton or whatever on the room service tray.

Today was two cartons of milk, a protein shake, a cup of cheerios, half a cup of soup, and some sugar snap peas. Which sounds like I'm starving myself, but all the medicine has made me have to force myself to eat because I'm rarely ever even hungry and usually food seems unpleasant.

Yesterday, I forgot to mention that some people from child psychiatrics came to see me and make sure that I was doing ok and didn't need to talk to anyone. It was nice and good, but they definitely came in while my nurse was in the room messing with my lines and poking me and I wasn't really paying attention to them much. Also they didn't seem to know when my transplant was going to be, because they mentioned me having someone to talk to before it happened. I think they were students and maybe I got lost in the shuffle somewhere, as I am not really a kid and not really an adult. Luckily, I have family and friends and support and etc. and don't need their services, so I'm doing all right.

They're still giving me tons of antibiotics but at a slower rate, since I haven't had a fever in a while, which is nice, but it means when they don't time things right, I have tons of medicine running into me all at once and the iv pole won't have it. Today they had to temporarily add a second pump because the pumps can't handle more than 4 tubes at once, and I needed 5 - two for the tacro (anti-rejection drug), one for an antibiotic, one for my fluids/electrolytes, and one for the last dose of the mini-chemo. I'm down to fewer stuff now, but at one point this morning I had what seemed like twenty bags of stuff running into me all at once. I needed another platelet transfusion again today, bringing my total platelet transfusion count for this round up to 4, which seems higher than last time.

My white cell count is .2 today, double what it was yesterday, but still rather small. Go up, cells, go up!